If you know what a kender is, you will understand. If not, this is going to be a collection of random stuff depending on how I feel, the events of the day, web sites, personal interests, trinkets, collectables and stuff from my pockets :)
sad times
My lady has gone to the hospital. Last week staff noticed she had a bit of a weeze. Not taking any chances we took her to the hospital in fear she may be developing pneumonia. Sure enough after x-rays and tests it was confirmed that she did have some fluid in her lungs. She was perscribed a med that was supposed to help, but it didn't agree to her system and made her very sick so she went back to the hospital where she has been for 6 days. I had visited her on Friday just to see how she was. Other than a bit pale she was her usual talkative self. She didn't recognize me, but that is ok. With Dementia/Alzheimers I can't expect that to happen all the time. It gave me some hope that she would be coming home sometime this week.
But I guess over the weekend her dementia got worst. And she doesn't seem to know how to drink or eat which is not a good sign. When she first went in I had this nagging fear that she wouldn't be coming home, if she isn't eating or drinking, that fear may become reality as the hospital will not release her until she does.
I am really scared right now, and worried she will not be coming home, and the next time we see her she will be in a coffin. I know I am being selfish in wanting her to be with us a bit longer and such, but I also don't want her to suffer and after watching another lady go through the final stages of alzheimers before her passing it isn't pretty and it is a long drawn out process of loosing someone until they are nothing but a shell holding nothing but fear and confusion. With this lady she held on to her personality for a long long time, and there isn't much chance that if she does come back that she will be the same person she was before she left. So even if by some chance she does come home...she is already lost to us crying
Unfortunately, it is a sad but expected outcome for those with Alzheimer's. Everytime the person looses a memory or a skill it is like repeatedly loosing the person over and over. But as she is a Lady with Down's Syndrome it make it even worse because the work and routines that she had to go through to learn those skills in the first place, seems almost like a pointless effort to give her something she wasn't permitted to have.
She did come home yesterday. She isn't drinking nearly enough, but we are trying our best by offering her sips when she is interested in taking them. She has been eating which is good, and I've been trying to get my co-workers to spoon feed her liquids instead of the cup in hopes it may help get some fluid into her, but that hasn't caught on yet. Even though it is a lot more work I think I am kind of glad she is back even if only in body, and according to the supervisors is temporary. But it filled in a void we all had and at least this way we have been given a chance to properly say good-bye.